Saturday, May 30, 2009
Thursday, May 28, 2009
It was really nice to get : ).
All these things that people do for us are so great. We really appreciate it. But I think it will be even cooler for Aili when she gets older. She will be able to look back at the pictures, read this blog, & hear from stories from us, about all of the wonderful things people have done and all of the amazing things she has fought through to get where she is going.
So thank you all again, not just from us, but from Aili too!
I also would like to ask for some extra prayers for a friend of ours. I won't go into details or give any names for privacy purposes though. It would be nice if everyone could pray for a little boy that has the same thing as Aili. He is just about the same age as her & also lives on Fort Lewis.
I have to say we have some great friends & family!! I want to thank everyone for all that they do. All of the prayers & positive thoughts are wonderful, along with the words of encouragement. They mean a lot to us! I would also like the thank Carol for feeding our crazy cats for us & getting the mail, and Toni for watching our sweet baby girl Phoebe!!
Also Thank you SO much Virginia for the wonderful stuffed animal for Aili, it really brightened all of our day!! I know that lots of people are thinking of us, but it was a nice reminder and very unexpected!!! Here is a picture of Aili with the card & cute lion : )
Wednesday, May 27, 2009
Tuesday, May 26, 2009
We had to stop feeding Aili last night/this morning at 4 am. She took it pretty well, but wasn't the happiest. We showed up at the hospital at 11 am today & we were told that they had to push the surgery time back because the case before us was taking longer than expected. Although it sucked to have poor Aili not get to eat for even longer we understood that those things happen and know the other parents must have been stressed out! With Aili's first surgery instead of the normal maybe 4-5 hours she was back there for 12! So they told us to come back 1pm. We went and got a bite to eat and ran a few errands, like the bank & got some diapers from the hotel, and then we came back. We signed back in and got her stats. I wiped her down with a special wipe & got her dressed in her hospital gown, which she looks adorable in! So we waited in that room for a long time. During that time we talked to the surgeon, some nurses & the anesthesiologists. It wasn't too bad of a wait, the kids stayed entertained with some toys we brought & a movie in the room. Aili was just tired & hungry, which she finally fell asleep and got a little cat nap in. They came and got Aili at about 3:30. Then they started to prep work, anesthesia getting IV's in, etc. They paged us at 5:30pm to let us know they had begun the actual surgery. They just recently paged us at about 7:30pm and said she was off of the bypass machine and they were doing good. So I guess they are just finishing up the surgery and will let us know.
While we waited we got some coffee downstairs, played in the playroom, got some dinner at the cafeteria, brought Aili's stuff to her room & now we are in the Family room on the computers (updating the blog, paying a bill, etc.).
So I will update again when I get a chance : ) Hopefully I can post some pictures on the next post!
Friday, May 8, 2009
The 'reptile man' came to Connor's school.... Taryn with the snake...
We just scheduled her second open heart surgery. It will be on May 26th. They will be doing the Glenn Operation (http://www.med.yale.edu/intmed/cardio/chd/surgery_glenn/index.html).
Clay will be home soon to be here for the surgery and time in the hospital. Then sometime after we get home he will have to go back.