We had an appt. with Dr. Puntel yesterday (April 1st). Everything went great. Aili weighs in at 10 pounds 2 ounces! He did an Echo and everything looked great. We have noticed that her hands and feet have looked a little blue-r lately, but that is to be expected with her gaining weight. We said we would schedule an appt. with Seattle Children's for an Echo & appt. with their cardiologist and then from there we will schedule her next cardio cath. That appt. is set for April 23rd @ 1:30 pm. After we schedule and do her cardio cath they will decide when we should do her next surgery, which Dr. Puntel is prjecting to be between 6-9 months of age.
So she is doing great. SHe's eating well and gaining weight!
Here is a video I found on youtube that shows an open heart surgery on an HLHS baby at 9 days old. This is NOT Aili, but it is what she had done (at least for the most part). Caution it may be graphic to some!